Measures Developed and/or Validated for use in AYA Oncology
- Adolescent and Young Adult Psycho-Oncology Screening Tool (AYA-POST)
- Cancer Assessment for Young Adults–Testicular (CAYA-T)
- Cancer Distress Scales for Adolescents and Young Adults (CDS-AYA)
- Core Battery for AYA Clinical Trials
- Impact of Cancer Scale
- Late Adolescent and Young Adult Survivorship-Related Quality of Life Scale (LAYA-SRQL)
- Minneapolis-Manchester Quality of Life Instrument
- The AYA Needs Assessment and Service Bridge (NA-SB)
- Pediatric Quality of Life Inventory (PedsQL)
- Readiness for Transition from Pediatric to Adult Care
Reviews of Existing Measures
Bell, C. J., Bell, R. A., Zebrack, B., Kato, I., Morse, A., & Borinstein, S. C. (2018). Measuring development of adolescent and young adult cancer patients: An integrative review of available instruments. Journal of Adolescent and Young Adult Oncology, 7(3), 270-282. https://doi.org/10.1089/jayao.2017.0127
Clinton-McHarg, T., Carey, M., Sanson-Fisher, R., Shakeshaft, A., & Rainbird, K. (2010). Measuring the psychosocial health of adolescent and young adult (AYA) cancer survivors: A critical review. Health and quality of life outcomes, 8, 25. https://doi.org/10.1186/1477-7525-8-25
Engstrom, T., Tanner, S., Lee, W. R., Forbes, C., Walker, R., Bradford, N., & Pole, J. D. (2023). Patient reported outcome measure domains and tools used among adolescents and young adults with cancer: A scoping review. Critical Reviews in Oncology/Hematology, 181, 103867. https://doi.org/10.1016/j.critrevonc.2022.103867
Murphy, K. M., Siembida, E., Lau, N., Berkman, A., Roth, M., & Salsman, J. M. (2023). A systematic review of health-related quality of life outcomes in psychosocial intervention trials for adolescent and young adult cancer survivors. Critical Reviews in Oncology/Hematology, 188, 104045. https://doi.org/10.1016/j.critrevonc.2023.104045
Salsman, J. M., Danhauer, S. C., Moore, J. B., Canzona, M. R., Victorson, D. E., Zebrack, B. J., & Reeve, B. B. (2020). Optimizing the measurement of health‐related quality of life in adolescents and young adults with cancer. Cancer, 126(22), 4818-4824. https://doi.org/10.1002/cncr.33155